A clearer service, a practical resource or a better way to prepare. Explore how IAE could contribute to your organisation and the people it supports.
Find a starting point
Choose the audience closest to your work. These are suggested starting points, not eligibility rules. You can explore every offer and bring a different need.
All six audiences are shown.
Patient advocacy groups
Turn community priorities into services people can use.
Your members’ priorities can shape more than a message. They can inform the resource, service and evidence decisions an organisation makes.
IAE connects accessible preparation, purposeful involvement and practical service design so a contribution has somewhere useful to go.
A useful first output: An involvement brief and a clear account of what changes.
Adults living with a condition, families and carers can choose what to ask, how to participate and what they share.
A service-delivery charity, research funder and foundation may need different kinds of support. Start with the contribution you are trying to make.
IAE can help turn a service need, evidence question or proposed partnership into a focused brief, sound decisions and manageable work.
A useful first output: A project brief linking intended benefit, output, responsibility and review.
The intended beneficiary stays visible in the brief: who should find the service easier to use, what should become clearer and how the organisation will find out.
Small groups hold knowledge and relationships that a large programme can miss. A clear resource, support brief or introduction may be the contribution that helps now.
IAE welcomes informal groups and can explore a manageable contribution around your priority, time and practical needs. Selected pro bono work is agreed individually.
A useful first output: A small support brief or a resource your group can use and share.
People can contribute a perspective without buying services, becoming a spokesperson or sharing a personal medical story.
An unresolved responsibility, feasibility question or information gap can sit between research, care and delivery partners.
IAE helps make the decision, source base and handover clearer through organisational reviews, evidence planning and purposeful involvement.
A useful first output: A focused evidence or readiness brief with responsibilities and next actions.
Patients and contributors can receive clearer preparation and a more understandable account of the process. Clinical decisions remain with the responsible professionals.
Sponsors, providers and delivery teams see different parts of a programme. The interfaces need the same clarity as the individual plans.
IAE provides independent senior input on access strategy, evidence planning, regulatory governance and service capability.
A useful first output: A decision brief, responsibility map and focused delivery priorities.
The operational decision can be translated into clearer staff guidance and user-facing information, with the next action and accountable role understood.
Each starts with a defined contribution and something people can use. Proposed digital tools and continuing community spaces need their own scope and operating arrangements; these pages do not announce an existing platform or partnership.
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Service design and handbooks
Make the service make sense.
A service can depend on knowledge held by a few people. IAE turns that knowledge into a clear service map, working guidance and handover arrangements, connecting regulatory judgement with the decisions staff meet each day.
A useful first output
Begin with one journey. Leave with a service map and a handbook module your team can put to work.
Who benefits, and how would we know?
For the organisation
Your team has a shared reference for who decides, who acts and what confirms a complete handover. New contributors have somewhere useful to start.
For the people it supports
People using the service can understand the next step and where to ask for an update, without needing to understand the organisation behind it.
Review the benefit
Check whether staff and service users can identify the next action and responsible role.
Bring the handover or recurring question that needs a clearer answer.
IAE is developing digital capabilities around decision preparation, evidence, learning and community work. Start with a repeated task, then connect the right content, a simple workflow and a useful output. An organisation-branded or white-label edition can be part of the project.
A useful first output
Begin with one task and its intended users. Develop a brief and working demonstration for them to assess.
Who benefits, and how would we know?
For the organisation
Your team can assess a focused workflow before expanding it, with content ownership, permissions, maintenance and support considered from the start.
For the people it supports
The user leaves with something useful: prioritised questions, a clearer brief, a resource they can return to or an agreed next action.
Review the benefit
Observe whether people can complete the task and use the output; record where they get stuck.
A grassroots group may need a clearer resource, a short project brief or specialist input on a partnership. IAE can shape a contribution around the people it should help and the capacity available. Informal groups are welcome; selected pro bono work is agreed individually.
A useful first output
Send a few lines about one priority. Agree a manageable output, practical support and a clear handover.
Who benefits, and how would we know?
For the organisation
A bounded brief makes the request easier to explain and the contribution easier to complete. The group keeps an output it can use after the conversation.
For the people it supports
The work addresses a priority the community recognises, in a format it can actually use. Participation and support are not conditional on promoting IAE.
Review the benefit
Ask whether the group can use the output independently and what need remains unmet.
What is one thing that would make your group’s work easier?
People who connect with IAE’s purpose can contribute as independent advisers, ambassadors or occasional collaborators. The value may be an honest challenge, a resource review, a relevant introduction or a question others have missed.
A useful first output
Discuss the perspective you would like to contribute. Agree whether you speak personally or for an organisation and how the role is described.
Who benefits, and how would we know?
For the organisation
IAE gains a more grounded view of what is useful, what is missing and what should be reconsidered. A role has a purpose, agreed time and practical support.
For the people it supports
Contributors choose how they take part and retain their own voice. There is no promotion quota, required endorsement or expectation to share a medical story.
Review the benefit
Record what the contribution influenced and report back, including where a suggestion was not taken forward.
IAE can help shape a purposeful community format: the question, ways to participate, facilitation and a clear route for concerns. Human, AI-assisted or hybrid approaches are assessed for the actual activity. A continuing space needs an operating model that fits its purpose.
A useful first output
Begin with a listening brief or a scheduled conversation. Use what is learned to decide whether a continuing space would help.
Who benefits, and how would we know?
For the organisation
A defined format makes the work of convening, moderation and follow-up visible. It gives the organisation a basis for deciding what it can sustain.
For the people it supports
People can choose to advise, host, explore supported moderation or participate without an operating role. Listening, writing and speaking can all be useful contributions.
Review the benefit
Ask whether the format met its purpose, who could not participate and what support was actually needed.
IAE turns complex process information into clear preparation resources. A question sheet, plain-language guide or accessible edition can help adults living with a condition, families, carers and professionals organise what matters before a conversation.
A useful first output
Begin with a recurring question. Develop one resource with a clear purpose, reliable sources and a useful next step.
Who benefits, and how would we know?
For the organisation
A maintained resource gives the organisation a consistent starting point for recurring questions and a way to spot what still needs explaining.
For the people it supports
Someone can choose their priorities, prepare in their own time and take the output to the responsible care or programme team. A companion can help without taking over.
Review the benefit
Test whether intended users can find, prioritise and understand the questions in the format they need.
IAE connects evidence judgement with practical publishing. The work may be a source review, staff handbook, educational guide or evidence brief. Its purpose, interpretation, ownership and review date travel with the content so the next edition has a clear basis.
A useful first output
Begin with one resource or source collection. Establish the key changes, source register and review responsibilities.
Who benefits, and how would we know?
For the organisation
The organisation can trace a statement to its source, distinguish evidence from interpretation and maintain web, print and other agreed editions together.
For the people it supports
Readers can understand the basis of the information, find the relevant source and raise a correction. Clear limits support a more informed conversation.
Review the benefit
Check whether users can follow a claim to its source and whether a correction reaches affected editions.
IAE helps connect community and professional perspectives to service design and evidence planning. Start with an open decision, invite the relevant voices and make a clear record of the response. Useful involvement includes questions, disagreement and ideas that cannot be adopted.
A useful first output
Begin with one open decision. Prepare an involvement brief and a practical feedback-to-action record.
Who benefits, and how would we know?
For the organisation
The organisation gains a traceable account of what was heard, what changed and why. The record can inform the next design decision and prevent the same question being lost.
For the people it supports
Contributors can see the purpose of taking part and receive an honest account of what their input influenced. Adults, families and carers can speak in their own right.
Review the benefit
Ask whether contributors can identify what they influenced and whether the claimed change has evidence.
IAE can help a small organisation or specialist team define a gap, find relevant resources and explore appropriate connections. A permissioned resource or focused skills brief may be more useful than starting another large programme. Introductions are explored with the people involved.
A useful first output
Begin with the gap. Create a support brief, resource shortlist or introduction plan that makes the next conversation more productive.
Who benefits, and how would we know?
For the organisation
The organisation can explain the work, assess relevant experience and understand the rights and maintenance attached to a resource it reuses.
For the people it supports
The group can use the contribution to address a real need. Clear scope and a usable handover make support more likely to remain useful after the initial exchange.
Review the benefit
Track whether relevant help was actually agreed and whether the resulting output can be used.
What expertise, resource or connection would unlock your next step?
IAE welcomes ideas for interviews, conversations and educational resources. Our community direction includes podcasts, accessible summaries and free publication formats. Begin with work worth understanding, then choose the format, attribution and reuse together.
A useful first output
Begin with the topic and audience. Agree an independent editorial contribution and the formats that will make it useful.
Who benefits, and how would we know?
For the organisation
A permissioned source conversation can become a consistent article, interview, audio script or shareable resource, with a clear review and correction route.
For the people it supports
Contributors can explain their work without repeatedly retelling a personal story. Readers and listeners can choose a format and find a useful question or next step.
Review the benefit
Check accurate representation and usefulness; distinguish observed reach from demonstrated benefit.
What deserves a wider, better-informed conversation?
Select the offers you want to explore. The brief combines their proposed first outputs with questions to consider before a conversation. Nothing is sent or saved by this website.
No offers selected.
Your starting brief
Keep or edit this on your own device. Review it before sharing. Leave out personal medical records and confidential case details.
Clear arrangements from the start
For commissioned work, scope, responsibilities, timing and fees are agreed before work begins.
Your contribution is voluntary. We agree its purpose, format, attribution and practical support together. Community participation and editorial attention do not depend on buying services or endorsing IAE.
IAE's advice is independent of a medicine supply or logistics sale. Community participation and editorial decisions are independent of service purchasing. IAE does not accept paid community partnerships or paid editorial influence.
Selected pro bono work depends on fit and capacity. No grant, donation, treatment access or partnership is promised by an initial conversation.
